We had our appointments with our OB (regular baby-doctor) and our MFM (Maternal/Fetal Medicine aka high-risk baby-doctor) physicians this week. It started off with the MFM appointment, which Ben couldn’t come to. I went in, did all the vitals, etc. Then they asked me to lie on the reclining table thing while the tech scanned me. This was awful. You see, on a daily basis since about 18 weeks, I feel like I cannot breathe. It was a major complaint of mine when I was pregnant with Darcy, but it is 10x worse this pregnancy. No position helps unless I am sitting straight up, or leaned forward like a 75-year-old man with COPD. So, after about five minutes, I said, “I’m really sorry, but I need to sit up now.” They said, “Oh, we’ll raise the head of the bed. That will help.” “No, I am going to puke if you don’t let me sit straight up.” Then everything starting going black, and I started sweating, and I thought I was going to die. So, my sonographer finished the scan with me sitting straight up. “Wow. You’re really symptomatic, how do you sleep at night? Reclined?” First of all, thank you Captain Obvious. Yes, I am super symptomatic because I CANNOT EFFING BREATHE. Secondly, reclining is terrible. You’ve just witnessed this. And I do not sleep is your answer. I wake up every 45 minutes to an hour to try to readjust. Well, this information concerns the MFM physician, and he says I might have congestive heart failure. WUT? Then he follows that little pearl up with, “I mean, do you exercise?” “Well, I ran a half marathon last December, and ran 5-10ish miles a week up until 15 weeks with this pregnancy.” “Oh okay, then. You’re probably fine. We just don’t see many small mamas with this much trouble breathing.” Anyway, he examined me and determined that I was just “super symptomatic,” and I wasn’t in congestive heart failure.
That was how things began. Then we discovered that based on my scan I have borderline polyhydramnios. This means I have almost too much fluid, which can contribute to a litany of pregnancy issues including “breathlessness.” Clark looks the same—skull is funky, foot is clubbed–AND is measuring a couple of weeks ahead of my due date. Also, because he is a wiggle-worm, MFM couldn’t get great images of his pulmonary artery, and I’ve been referred for a fetal echocardiogram. I also failed my 1-hour-glucose screen that day, so depending on my results of my 3-hour-test that I took today, I might have gestational diabetes, too. Then the doctor said he wanted me to get another genetic screening test done, but the first we had done wasn’t covered by insurance (you do not even want to know the price tag on that one). So, I asked if it would change the treatment plan, and he said no, so we declined the test. Anddd, basically Tuesday’s appointment was a huge pile of suck.
I’m okay with it all now, but Tuesday, I was distraught. I try to stay positive, and I know that these physicians’ jobs are to rule out any issues, but I’m at the point where I do not desire to know one more possibly negative thing about this pregnancy. I just don’t care to know. If it isn’t going to make a difference, then I don’t give a damn to know if or what kind of chromosomal abnormality MAY exist in Clark. Unless I start passing out, I don’t want to know if my heart function is shitty because of CHF. I have enough information at this time to decide I DON’T WANT TO KNOW ANOTHER DAMN THING. Because everything is “possibilities” and “probabilities” and “increased chance of” and/or “potential problem.” For some, knowing everything brings peace. For me, it brings doubt, and I don’t want to give Satan any more reasons to tempt me to doubt the goodness of God. I just don’t. I truly believe that God will give me the strength to deal with whatever comes our way WHEN it actually comes our way. One of my favorite books concerning faith is Corrie ten Boom’s The Hiding Place. She was just an incredible woman filled with wisdom, and she kind of agrees with me on the worrying thing.
Corrie ten Boom said, “Worrying is carrying tomorrow’s load with today’s strength- carrying two days at once. It is moving into tomorrow ahead of time. Worrying doesn’t empty tomorrow of its sorrow, it empties today of its strength.”
And the more information that something “could be significant” or “could be nothing,” the more I worry. Ben and I have different perspectives when it comes to hardships and faith. Ben always believes that things will get better. That it IS going to be okay. I personally believe that saying things “will get better” is an invitation for things to become exponentially worse. I’m truly not pessimistic, but even you have to admit that the scales of fairness, statistics, and equality seem a little warped, and not in our favor. I believe that Clark won’t be healed, but that God will give me the strength the deal with whatever comes our way when he is born. My sister keeps telling me, “Clark will be who he has been created to be.” And that brings me comfort. God has allowed all of this. He has created Clark for His purpose, and He loves this baby far more than I could ever imagine. Just like He loves me. And that is good. It is the good stuff in the ugly situation, y’all. Beauty from ashes, and it will be beautiful.
As for grad school, I withdrew from one of my classes. It was an exhaustive, research-based, labor-intensive class, and I just don’t have the get-up and go for that and my other clinical-based grad school class, 40-hour work weeks, being a high-risk baby incubator, and existing as a functional human. It’s beyond my abilities at this point. So, this skews my overall ‘graduate as quickly as possible’ plan. I now feel at peace with this decision, even though it felt like a huge personal failure at the time.
Darcy is hilarious. She is rough and tumble and so, so much fun. She loves to run to me and shove her face in mine and just giggle. She also has about 10 bruises and six scratches from her legs to her face, and both knees are skinned and scabbed. Kid plays hard. Also, we got an incident report from her daycare because of an altercation regarding possession of a toy. Darcy had toy, friend wanted toy, a struggle ensued, and Darcy bit the hell out of friend. Ohmylanta. I’m sorry, mom of bitten child. My daughter is unreasonable and will fight to the death for her teeth to be brushed, so a perceived threat over a toy will likely continue to be dealt with a heavy hand (teeth). Sorry. She doesn’t bite at home.
Anyway, that’s all for now in our lives! I promise, I plan on writing a fun, non-heavy blog later on in the next few days detailing our first trip to Ikea with baby Darcy. Bless you, if you’re still reading along. Love to all.
2 thoughts on “When you’re just keepin’ on, keepin’ on”
I love your blog. It is educational and funny. You are so straight forward and honest. I hope voicing your thoughts and feelings through the blog helps. This is a crazy, difficult time in y’all’s life. I pray for strength, good health for you and healing for Clark.
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Love you Linda! Your prayers are so appreciated ❤